Information about you

Information about you If you have an acoustic neuroma, your clinical team will pass information about you on to the National Congenital Anomaly and Rare Diseases Registration Service (NCARDRS). This helps scientists look for better ways to prevent and treat this condition. You can opt out of the register at any time. Find out more about the register . The 100,000 Genomes Project If your doctor thinks there could be a genetic cause for your acoustic neuroma, you may be invited to take part in the 100,000 Genomes Project. Your DNA will be studied to find out more about the cause of your condition. The aim is to create a new personalised medicine service for the NHS. This should transform the way people are cared for. Find out if you might be able to take part .
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