Erythromelalgia
More information and support
Specialist centres in the UK Paediatric cases: Great Ormond Street Hospitalfor Children Pain Control Service Clinical Lead for Pain Management Department of Anaesthesia and Pain Medicine Level 4, Paul OGorman Building London, WC1N 3JH Pain Control Service at Great Ormond Street Hospital website Email: referrals@gosh.nhs.uk Fax: 020 7242 4901 Adult cases: Pain Management Centre National Hospital for Neurology and Neurosurgery Internal Mailbox 145 Queen Square London, WC1N 3BG Fax: 020 3448 3511 (internal: 83511) Pain Management Centre website Online referrals are preferred for adult cases see the website fora referral form. Useful links The Erythromelalgia Association NHS Choices: peripheral neuropathy Foundation for Peripheral Neuropathy Pain Concern Peripheral neuropathy forum
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Introduction
Erythromelalgia is a rare disorder that causes episodes of burning pain and redness in the hands and feet, and sometimes the arms, legs, ears and face.
How severe can it be?
People with erythromelalgia typically suffer episodes or flare-ups of severe pain lasting from a few minutes to days. Flare-ups usually start as an itching sensation, which worsens to a severe burnin
What are the triggers?
Symptoms are usually triggered by an increase in body temperature. They can start after exercising,wearing warm socks, gloves or tight shoes,entering a warm room, being dehydrated, or evenconsuming a
What is the cause?
For most people witherythromelalgia,the cause is unknown. However, in some cases, an underlying cause may be found usually a medical condition or a faulty gene (see below). Underlying disease Eryt
Can it be treated?
Cooling the skin and elevation Cooling the skin with a fan or cold water, or raising the affected hands or feetmay relieve the pain. However, using ice or soaking the hands or feet for long amounts
Information about you
If you or your child haserythromelalgia, your clinical team will pass information about you/your childon to the National Congenital Anomaly and Rare Diseases Registration Service (NCARDRS). This help
More information and support
Specialist centres in the UK Paediatric cases: Great Ormond Street Hospitalfor Children Pain Control Service Clinical Lead for Pain Management Department of Anaesthesia and Pain Medicine Level 4, P
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